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Mother of five with rare kidney disease asks community's help

By: Victoria Maranan Email
By: Victoria Maranan Email

DENISON, TX-A Bells mother is asking for the community's help to get treatment for a rare kidney disease she's been fighting for seven years.

Twenty-two-year old Katie Daniel was diagnosed with Fanconi's Syndrome when she was 15. It's when the kidney tubes don't absorb essential nutrients for the body like they're supposed to, but instead flushes them out of the body.

Daniel, mother of five, said she's been in and out of the hospital for seven years since she was diagnosed with the condition.

"I have my good days and bad days and this past week I've been feeling really weak I can't get out of bed for Easter with my kids," she said.

According to the University of Maryland Medical Center, Fanconi's Syndrome is a disorder of the kidney tubes where they fail to do what they're supposed to: absorb key nutrients back into the body, but instead flushes them out into the urine.

If untreated, the condition can lead to kidney failure.

Daniel said she was diagnosed with the disease when she was 15 after proteins and glucose was found in her urine by a doctor in Greenville.

"I was feeling really sick almost that I have the flu, and I kinda just pass it off as from that drink and then a few days later, it came to the point that I couldn't see anything. I had the worst headache ever," she said.

Daniel visited with area nephrologists looking for treatment, but said they can only do so much.

"Over the years i've had to have blood transfusions, like IV's with potassium and trying to get my iron up and platelet count up and phospates," she said.

That's why she's trying to see Dr. Paul Grimms at Stanford University, who specializes in Fanconi's Syndrome.

"At this point I'm just desperate because I, like this past week, I've just been so much worse and doctors don't have answers for me and they're kinda at their last resort and this is my last hope," she said.

And time is running out.

"They said that the life expectancy is 29 years and I'm 22, I only have 7 years. I just want my kids to remember me as a mom not laying in bed sick all the time," Daniel said.

She will be heading west to Stanford for treatment this summer, hoping to raise $70,000 by then.


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