2-year-old Colbert boy born with genetic disorder, beating the odds

SHERMAN, Tex. (KXII)-- Creed Haile was born in December 2016, when his mother gave birth she and Creed both nearly lost their lives.

After he was delivered doctors diagnosed Creed with a genetic disorder called Holoprosencephaly, a cause of cerebral palsy.

His grandma, Rhonda Haile said, "He went into emergency C-section, he weighed three pound nine ounces, and within the first 12 hours they knew, there were signs that showed he had Holoprosencephaly."

He was born deaf, and told he'd never walk. Doctors suggested the family to start looking for a place to leave Creed where he could have round the clock care.

His grandparents who now care for Creed said no.

"If anybody met Creed, and saw him smile and he uses his eyes to communicate, there would be no way you would even think about putting him in an institution, he's family, he's our baby."

Each day Creed has physical therapy and is fed through a tube.

His medical equipment alone cost $25,000 and each month more is needed to help pay for his medication.

On Saturday the Sherman Elks Lodge hosted a benefit for Creed where dozens of items were auctioned to help raise money for Creed's well being.

His grandpa, Billy Haile said, "With our family we don't give up, we persevere, we do everything we can."

Each day is a battle for Creed and his family both emotionally and financially.

But for the Haile's they say its a sacrifice worth making.

"We never give up hope in life, you should never give up hope for anybody that you love."

You can keep track of Creed's progress on his Facebook page by searching "Hope 4 Creed."