Rare disease claims toddler's life, family springs into action

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SHERMAN, Tex. (KXII) -- This week (Sept. 16 - 20) is Mitochondrial Disease Awareness Week and a family who lost their young son to a rare disease is collecting donations in his memory.

2-year-old Beckett Spencer passed away in April from Leigh Syndrome, a disorder that eventually shuts down the brain and the body.

His mom Katie - who graduated from S&S High School - gives buckets of supplies to families staying at the ICU, since she knows many times trips to the hospital are unplanned.

If you would like to donate, here's a list of what they need:

Shampoo
Conditioner
Soap
Food gift cards
Journals/pens
Socks
Earbuds
Phone chargers
Toothbrushes
Tooth paste
Blankets
Stuffed animals for the kids
Books for parents to read aloud

Donations can be dropped off at First United Methodist Church of Sherman. Call Emily at 903-893-6514 before you drop off.

If you aren't able to donate, the Spencer family asks you to wear green this week to raise awareness about mitochondrial disease and in memory of Beckett.